In April 2017 when our beautiful healthy son Max was just 19 months old he started having a few nights of extremely restless sleep/clinginess and then started having trouble walking. Much to our shock he was diagnosed with a malignant Brain Tumour called Anaplastic Ependymoma.
We were rushed interstate for surgery which didn’t go very well, and the Surgeon only managed to resect about 30% of the tumour. We were told another surgery would most likely not be possible even after chemo or radiation as resecting his tumour was just too risky as it was wrapped around his brainstem. This meant Max would have a terminal diagnosis.
We made the decision to seek another opinion and went to Professor Charlie Teo. Charlie managed to get almost all of Max’s tumour removed as safely as possible, this was a huge deal and bought us 3 years of clear scans and great health post treatment.
Unfortunately, Max’s tumour returned when he was 4.5 years old, and then again at 5 years old. This type of tumour is notorious for being resistant to treatment and often returning. The best-case scenario is to remove all of it and with the first surgery.
Sadly, Max passed away on the 9th May 2021 at home in his parents’ arms at 5.5 years old. However, we are eternally grateful for Charlie for giving us 4 extra years that didn’t seem possible in 2017.
Max was the most amazing, happy, smart, kind, beautiful soul who loved life and had a bright future ahead of him which was taken too soon. Born and bred in Darwin, he loved to get out on the boat and fish. He was always eager to catch a bigger fish than dad and we want to honour his life the best way possible and to raise awareness of childhood Brain cancer.
We were grateful Charlie offered life saving surgery and gave us some hope and precious years with Max. Consequently, we choose to Fundraise for the Charlie Teo Foundation as all the money raised goes directly to research for Brain Cancer. The Foundation runs on a low-cost model that is completely transparent and is run mainly by volunteers who often have been affected by brain cancer.
They are bringing hope for a better future by funding research and treatments that can extend lives and eventually find a cure for Brain Cancer.
Along with raising funds for research we want to raise awareness for Pediatric Brain Cancer which is killing more children than any other disease in Australia.
Our plan is to run an annual family friendly fishing competition here in Darwin on the 13-15 May 2022 and yearly thereafter.
A family-friendly fishing competition held across the Darwin, Gove and Katherine region over 2 fun-filled days with all funds raised going directly to the Charlie Teo Foundation to assist with Brain Cancer Research.
Adult entries will qualify for the lucky door prize for a chance to win a boat from Quality Marine (Valued at $26,000).
Please put family name as reference
Account name: Maxs cast for a cure
Children $20 (under 16)
We choose to support the Charlie Teo Foundation because he was the only Neurosurgeon who offered compassion and a ray of hope when we sought his opinion. There is a desperate need for more research and so little funds to carry out this research
Funding the best brains to beat brain cancer
Brain cancer kills more children in Australia than any other disease and more people under 40 than any other cancer. The worst type of brain cancer, GBM, is also the most common and has an average survival of only 15 months from diagnosis.
As a neurosurgeon I have operated on patients from all around the world who have been given no hope. At the Charlie Teo Foundation, we fund game-changing brain cancer research, offering hope of a better future for patients and families.
We need to start thinking differently to find a solution.
All rights reserved Max’s Cast for a Cure Foundation 2022